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Orphacode

Projects and Joint actions

EUCERD Joint Action WP5: RD Coding

ORPHANET

Documents

Summary report of the workshop on Orpha codes in health information systems (18 /3/ 2014, Paris)
Documents_ Workshop on cross referencing of terminologies (27-28 /9/ 2012, Paris)
Rare diseases in the ICD-11 Beta Draft
Information leaflet on how to use the OrphaCode: Making rare diseases visible in your health information system