EUROPLAN 2008-2011 Coordinator

  Italy
• National Institute of Health, National Centre for Rare Diseases

ASSOCIATED PARTNERS

  Bulgaria
• Bulgarian Association for Promotion of Education and Science (BAPES) - Information Centre for Rare Diseases and Orphan
  

  Estonia
• University of Tartu (UT) – Department of Paediatrics

  Spain
• Instituto de Salud Carlos III (ISCIII) – Research Institute for Rare Diseases (IIER)
• Spain -Canary Fundacion de Investigacion y Salud (FUNCIS)

  Italy
• Institute of Pharmacological Research Mario Negri (IRFMN) – Clinical Research Center for Rare Diseases

  Netherlands
• The Netherlands Organisation for Health Research and Development (ZonMw) – Steering Committee on Orphan Drugs

  Sweden
• Karolinska Institutet (KI) – Department of Women and Child Health

  UK
• London Strategic Health Authority (NCG) – National Commissioning Group

  France
• European Organisation for Rare Diseases (EURORDIS)

COLLABORATING PARTNERS

  Belgium
• Human genetics Center

  Czech Republic
• University Hospital of Motol
• Ministry of Health

  Denmark
• The National Board of Health

  Germany
• Federal Ministry of Health

  Ireland
• The St. Joseph, Ballinabearna Ballinhassig, Co. Cork

  Greece
• Hellenic Center for Rare Disease Control & Prevention (HCDPC)
• Division Pharmaceutical Studies and Research
• The Greek Alliance Of Rare Disease
• Autonomous University of Barcelona
• European Network for Rare and Congenital Anaemias (Enerca)
• Ministry of Health and Social Policy
• The Biomedical Network Research Centre for Rare Diseases (CIBERER)

  France
• Ministry of Health and Sports

  Italy
• Health Regional Agency - Friuli Venezia Giulia
• Epidemiology Unit, National Institute for the Study and Care of Tumors
• EUROCAT –Tuscany Congenital Anomalies Registry, National Research Council
• Ministry of Health
• “S. Giovanni Bosco” Hospital Multidisciplinar Centre of Immunopathologic Research

  Cyprus
• The Cyprus Institute of Neurology & Genetics – Clinical Genetics Department

  Latvia
• Ministry of Health

  Lithuania
• Ministry of Health

  Luxembourg
• Ministry of Health and the Rare Disease Task Force

  Hungary
• University Pécs, Faculty of Health Sciences, Institute of Applied Health Sciences

  Malta
• Mater Dei Hospital, Department of Pathology Genetics Unit

  Austria
• University Children's Hospital

  Poland
• Ministry of Health
• Polish National Forum on the Treatment of Orphan Diseases – ORPHAN

  Portugal
• Hospital Dona Estafania – Servicio Genetica medica

  Romania
• Romanian Prader Willi Association

  Slovenia
• Ministry of Health

  Slovak Republic
• University Children's Hospital, Kosice

  Finland
• The Family Federation of Finland - Department of Medical Genetics

  Sweden
• Medical Products Agency
• National Board of Health and Welfare – Health Care and medical Service Department

  Croatia
• Children s University Hospital Zagreb

  Turkey
• Department of Medical Biology, Hacettepe University,Faculty of Medicine, Ihsan Dogramaci Children's Hospital, Sihhiye

  Canada
• Office of legislative and regulatory modernisation Policy,planning and international affairs directorate Health products and Flood Branch

  Armenia
• “Neurohereditary Diseases” Charity AssociationRussian Federation - National Association of Organizations of Patients with Rare Diseases “Genetics”

  Georgia
• Georgian Foundation for Genetic and Rare Diseases

  US
• Office for Rare Diseases, National Institute of Health