EUROPLAN - European Project for Rare Diseases National Plans Development

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- 28-29 October 2014, Rome
- 8 May 2014, Berlin
- 25 March 2013 - Rome
- 10-11 September 2012, Rome
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Home > Events > Workshops > 10-11 September 2012 - Rome

Inception Workshop

on National Planning for Rare Diseases
10-11 September 2012 - Rome, Italy

Report
Program
Participants
Accomodations
Presentations
- EUCERD Joint Action 2012 - 2015 - Stephen Lynn
- European project for rare diseases national plans development - Domenica Taruscio
- EURORDIS’ activities for National Plans - Valentina Bottarelli
- State of the art for national plans for rare disease - Edmund Jessop
- Strengths and weaknesses in developing national plans - Rita Ferrelli
- Lessons learnt from successes and failures in developing national plans - Rita Ferrelli
- Recommendations for the Development of National Plans or Strategies for Rare Diseases - Domenica Taruscio
- Selecting indicators to evaluate the achievements of RD initiatives - Manuel Posada
- The delphi process for selecting indicators - Rita Ferrelli
- Definition of actions supporting National Plans for Rare Diseases
Secretariat
How to get to the meeting site
BY TRAIN (approx. 45 minutes):
- From air terminal (Leonardo Da Vinci – Fiumicino Airport) to Termini railway station with train, Leonardo Express (without stops, ticket: 14€);
- From Termini railway station take
- From air terminal (Leonardo Da Vinci – Fiumiucino Airport) to Tiburtina railway station with FL1 Regional train (with stops - duration: 47 min. - frequency: one train each 15 min. - cost: 8€/one way ticket);
- From Tiburtina railway station take • walk 800 metres to Workshop Venue (cost: 1,50 €/one way ticket);
  • or alternatively, buses no. 490, 491 or 495 (5. min), exit at Lega Lombarda/Province stop and walk 300 metres to Workshop Venue (cost: 1,50 €/one way ticket);
  • or alternatively, a taxi to Workshop Venue (5 min.).
BY TAXI (approx. 30-40 minutes):
BY BUS (approx. 70 minutes):
- From air terminal (Leonardo Da Vinci – Fiumiucino Airport) by Terravision Bus (Buses are at the BUS stop concentration adjacent to the exits from Terminal 3 – Arrivals, bus stall n. 3. Follow the sign saying " Bus Station " to reach them) or Sit Bus Shuttle (Buses are at the BUS stop concentration adjacent to the exits from Terminal 3 – Arrivals, bus stall n. 1. Follow the sign saying " Bus Station " to reach them.) to Termini railway station. The journey takes approximately 55 min. and the buses run approximately every 30 minutes. (Tickets: 5/8 €).
- From air terminal (Ciampino Airport) by Terravision Bus or Sit Bus Shuttle (Buses are parked in dedicated bus bays opposite International Departures) to Termini railway station.
- From Termini railway station take
  • the underground B line (direction Rebibbia), exit at Bologna station;
  • or alternatively, bus no. 310, exit at Ippocrate/Province stop and walk 100 metres to the Workshop Venue (if you want to reach the Globus Hotel, get off at the previous stop “Ippocrate/Marchiafava”),
  • or alternatively, a taxi to Workshop Venue.