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Work packages overview


WP1-WP3

deal with the management of the project and the dissemination and evaluation of the results.

WP4-WP8

are the core WPs.

WP4

collects of information on the initiatives undertaken by EU MSs on rare diseases. A dedicated survey is aimed at gathering examples of different MSs experiences and lessons learned allowing the sharing of information among Member States.

WP5

develops indicators for monitoring the implementation and for evaluating the impact of National Plans or Strategies for rare diseases.

WP6

analyses case studies to identify relevant experiences.

WP7

develops the content of the EUROPLAN recommendations including a methodological guidance to design comprehensive and integrated strategies for guiding and structuring all relevant actions in the field of rare diseases.

WP8

deals with the organisation of National Conferences where national stakeholders are convened to discuss the EUROPLAN Recommendations Document within the specific national context.