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National Conferences 2008-2011

Bulgaria
Sofia - 2010, May 28-29-30
organized by
NAPRD National Alliance of People with RD

Final Report
Croatia
Dubrovnik - 2010, September 17-19
organized by
Croatian Society for Rare Diseases
DEBRA - Croatian Epidermolysis Bullosa Association
Cancer Patient Association „Za novi dan“
Croatian Cystic Fibrosis Association
Association of Persons with Prader-Willi Syndrome Croatia

Final Report

Denmark
Copenhagen - 2010,November 19
organized by
Rare Disorders Denmark (RDD)
www.raredisorders.dk

Final Report
France
Paris - 2010,September 30
organized by
FRENCH RARE DISEASES ALLIANCE (AMR)

Final Report
Germany


organized by
ALLIANZ CHRONISCHER SELTENER ERKRANKUNGEN (ACHSE)

Final Report

Greece
ens - 2010,November 26-27
organized by
Greek Alliance for RD (PESPA)
www.pespa.gr

Final Report
Hungary
Budapest - 2010,October 15-16
organized by
RARE DISEASE HUNGARY (HUFERDIS)
www.rirosz.hu

Final Report
Ireland
Dublin - 2011,January 20
organized by
GENETIC AND RARE DISORDERS ORGANISATION (GRDO)

Final Report
Italy
Florence - 2010,November 11-12-13
organized by
FEDERAZIONE ITALIANA MALATTIE RARE (UNIAMO)
Final Report
Netherlands
The Hague - 2010,November 19
organized by
Dutch Genetic Alliance (VSOP)
Final Report
Poland
Krakow - 2010,October 22
organized by
Polish Cystic Fibrosis Foundation (MATIO)
Final Report
Romania

organized by
Federación Española de Enfermedades RaraS (FEDER)

Final Report
Spain

organized by
Federación Española de Enfermedades Raras (FEDER)
www.enfermedades-raras.org
United Kingdom
Manchester - 2010,November 16
organized by
Genetic Interrest Group - Rare Diseaseuk

Final Report
Sweden

Rare Disease Sweden (SÄLLSYNTA DIAGNOSER)

Final Report