Home > Events > National Conferences > National Conferences 2012-2015

National Conferences 2012-2015

For more information about the NCs, consult the map on the EURORDIS site


Belgium
Brussels, 28 February 2014
organized by
Belgian Alliance for Rare Diseases (RaDiOrg)
www.radiorg.be
Croatia
Zagreb, 27 and 28 February 2014
organized by
Croatian Alliance for Rare Diseases
www.rijetke-bolesti.hr
Cyprus
Nicosia, 14 and 15 November 2013
organized by
Cyprus Alliance for Rare Disorders (CARD)
www.thalassaemia.org.cy
Denmark
Copenhagen, 23 January 2015
organized by
Rare Disorders Denmark (RDD)
www.raredisorders.dk
Finland
Helsinki, 21 September 2013
organized by
Rare Disease Alliance Finland (HARSO)
http://www.harsofinland.net
France
Paris, 13 January 2014
organized by
Alliance Maladies Rares
www.alliance-maladies-rares.org
Greece
Athens, 1 December 2012
organized by
Greek Alliance for RD (PESPA)
www.pespa.gr

Final Report
Hungary
Budapest, 25-26 October 2013
organized by
Hungarian Federation of People with Rare and Congenital Diseases (HUFERDIS)
www.rirosz.hu
Ireland
Dublin, February 2015
organized by
Irish Genetic and Rare Disorders Organisation (GRDO)
www.grdo.ie
Italy
Rome, 27-28 January 2014
organized by
Italian Alliance for Rare Diseases (UNIAMO)
www.uniamo.org
Lithuania
Vilnius, During Lithuanian EU Presidency - 14 November 2013
organized by
Ministry of Health / Vilnius University

Final Report
Luxembourg
Luxembourg, 19-20 November 2013
organized by
Luxembourg Alliance for Rare Diseases and Neuro Muscular Diseases (ALAN)
www.alan.lu/alan

Final Report
Netherlands
The Hague/ Rijswijk, 14-15 November 2013
organized by
Dutch Genetic Alliance (VSOP)
www.vsop.nl
Poland
Warsaw, 27-28 September 2013
organized by
Polish National Forum for rare diseases therapy (ORPHAN)
www.rzadkiechoroby.pl

Final Report
Portugal
Lisboa, February 2015
organized by
Portuguese Alliance of Rare Disease Patient Organisations (APADR)
http://www.aliancadoencasraras.org
Romania
Bucharest, 24-25 May 2013
organized by
Romanian National Alliance for Rare Diseases (RONARD)
wwww.aliancadoencasraras.ro

Final Report
Slovakia
Bratislava, 28 February 2013
organized by
Slovak Alliance of Rare Diseases (SAZCH)
www.sazch.sk

Final Report
Spain
Madrid, 20-21 November 2014
organized by
FEDER, Spanish Alliance for Rare Diseases
www.enfermedades-raras.org
Sweden
Stockolm, 26 November 2012
organized by
Rare Disease Sweden
www.sallsyntadiagnoser.se

Final Report
United Kingdom

London, 24 June 2014
organized by
Rare Disease UK
www.raredisease.org.uk
Georgia
Tbilissi, 17 April 2013
organized by
GeRad, Georgian Foundation for Genetic and Rare Diseases

Final Report
Russia
Moscow, 28 February 2013
organized by
National Association of Organization of Patients
with Rare Diseases (GENETICS«Genetics») and
Russian Patients Union
Rare Disease Working Group
Serbia
Belgrade, 5-6 December 2013
organized by
Serbian National Organisation for Rare Diseases (NORBS)
http://www.norbs.rs

Final Report
Ukraine
Кiev, 27 March 2013
CSMA; Кharkiv charitable foundation children with spinal muscular atroph
csma.org.ua/europlan/rprog.html

Final Report